#Rare diseases

Charlie Gard. Intertwined hands

Now the smaller hand has left the grip,  without voice nor words it sung and suffered Nunc dimittis, transmitting the…

Pope Francis: to Huntington’s disease patients, scientists must not fuel “throw-away culture”. No to research with “destruction of human embryos”

Pope Francis: rare diseases, “no more indifference”. “Ensure access to care”